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Patient Advocacy

My Biomarker Story, and Why I Advocate for Genetic Testing
Patient AdvocacyPatient StoriesCancer Biomarkers
Wenora Y. Johnson, 3-time survivor, shares her cancer story and encourages patients to ask their care team about biomarker testing.
Finding Our Voices, Telling Our Stories: Metastatic Breast Cancer Advocacy
Breast CancerPatient Advocacy
Musa Mayer, breast cancer survivor and advocate, was recently recognized for her 25 years of advocacy on behalf of patients with advanced breast cancer. Read Musa’s inspiring story.
The Patient Advocate Foundation: Helping Patients to Access Effective Care
Financial SupportPatient AdvocacySupport Services
Alan Balch, PhD, CEO of the Patient Advocate Foundation (PAF), a nonprofit organization, discusses the support services PAF offers to patients with cancer in this interview.
Becoming a Patient Advocate After a Multiple Myeloma Diagnosis
Cancer ResearchMultiple MyelomaPatient Advocacy
Jack Aiello, multiple myeloma survivor, looks at the importance of patient advocacy and breaks down the different areas of advocacy.
Patient Advocacy in Support of James Bond's Fight to Conquer Multiple Myeloma
Multiple MyelomaPatient Advocacy
The death-defying feats of James Bond were explored on an episode of the Lifetime network’s The Balancing Act. No, not that James Bond. Our James Bond didn’t hail from the UK’s Secret Service, but is an American who has been besieged by a foe as lethal as Dr. No or SMERSH–the rare blood cancer multiple myeloma.
Becoming A Patient Advocate: It’s a Family Affair
Patient Advocacy
"The patient advocate is a sidekick, whose job is to help someone else become their best," says Ron Suskind, who learned how to be there for his son.
Including the Patient Voice in Clinical Trials Design
Cancer ResearchClinical TrialsPatient Advocacy
The role of patients in clinical trials is slowly changing, but enlightening more pharmaceutical companies about the value of the patient’s perspective in designing clinical trials is still a challenge.

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