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Patient Advocacy

A Breast Cancer Diagnosis and Stumbling into Advocacy in Nigeria
Breast CancerPatient Advocacy
Ngozi Ejedimu was diagnosed with breast cancer at age 39, after having a benign lump removed at age 19, and after experiencing firsthand the uninformed Nigerian breast cancer culture, she became an advocate for health literacy for Nigerian women.
Things They Often Don’t Tell You About Breast Cancer
Breast CancerPatient Advocacy
Diagnosed with stage II breast cancer at age 45, Lauren Schultz found herself having to navigate a new world she knew nothing about. Here, she gives specific tips she had to learn the hard way.
Contact a Myeloma Coach Through the Myeloma Crowd
Patient AdvocacyMultiple Myeloma
Sally Torgeson explains how a myeloma coach can help newly diagnosed patients with the vast array of information, emotional, and financial demands of this type of blood cancer.
Fighting Barriers to Care for Other Black Women After My Breast Cancer at Age 32
Patient AdvocacyDisparities in Cancer CareBreast Cancer
Maimah Karmo was diagnosed with stage II triple-negative breast cancer at age 32. After her diagnosis, she was emboldened to fight against the injustices and inequalities black women face in navigating medical care.
End of Life and Hospice Care: Being a Bedside Advocate, Part 3
Patient AdvocacyHospice Care
In this third article on bedside advocacy, Kimberley Norris illuminates key processes and aspects of end of life and hospice care that will be valuable for any advocate.
Becoming a Patient Advocate After a Small-Cell Lung Cancer Diagnosis at Age 28
Patient StoriesLung CancerPatient Advocacy
Montessa Lee’s pain persisted after an initial visit to the doctor and a misdiagnosis. Finally, an x-ray in the emergency room revealed a 15-cm mass on her left lung. Read how she turned anger into action.
Coast-to-Coast Bike Ride for Cancer: Riding in Peter’s Memory
Patient AdvocacyFamily Members
Mark DeLong’s son Peter was diagnosed with Ewing sarcoma, a rare bone cancer, at age 14, and died when he was just 16. Mark uses advocacy to raise funds for cancer research in Peter’s memory.
Both Sides of the Cancer Story
Patient AdvocacyBreast Cancer
Nicole Fuller went from being on the patient side of breast cancer to becoming an oncology navigator and advocate, cancer exercise specialist, and motivational speaker. This is her story.
Being a Bedside Advocate, Part 2: What the “White Coats” Want You to Know
Patient Advocacy
Kimberley Norris uses her experience as her husband’s bedside advocate to describe what it means to be a bedside advocate, providing physicians’ practical tips for people who are in a similar situation.
Three Words Is All It Took for My Life to Change Drastically: The Chick Mission
Fertility PreservationPatient AdvocacyPatient Stories
Amanda Rice was 37 when she was diagnosed with breast cancer for the first time. She describes her decision to freeze her eggs after her diagnosis, which led her to launch the nonprofit organization The Chick Mission to educate women on the impact of cancer treatment on becoming mothers.
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