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Patient Advocacy

Cancer ResearchClinical TrialsPatient Advocacy
The role of patients in clinical trials is slowly changing, but enlightening more pharmaceutical companies about the value of the patient’s perspective in designing clinical trials is still a challenge.
Patient Advocacy
"The patient advocate is a sidekick, whose job is to help someone else become their best," says Ron Suskind, who learned how to be there for his son.
Multiple MyelomaPatient Advocacy
The death-defying feats of James Bond were explored on an episode of the Lifetime network’s The Balancing Act. No, not that James Bond. Our James Bond didn’t hail from the UK’s Secret Service, but is an American who has been besieged by a foe as lethal as Dr. No or SMERSH–the rare blood cancer multiple myeloma.
Cancer ResearchMultiple MyelomaPatient Advocacy
Jack Aiello, multiple myeloma survivor, looks at the importance of patient advocacy and breaks down the different areas of advocacy.
Financial SupportPatient AdvocacySupport Services
Alan Balch, PhD, CEO of the Patient Advocate Foundation (PAF), a nonprofit organization, discusses the support services PAF offers to patients with cancer in this interview.
Breast CancerPatient Advocacy
Musa Mayer, breast cancer survivor and advocate, was recently recognized for her 25 years of advocacy on behalf of patients with advanced breast cancer. Read Musa’s inspiring story.
Patient AdvocacyPatient StoriesCancer Biomarkers
Wenora Y. Johnson, 3-time survivor, shares her cancer story and encourages patients to ask their care team about biomarker testing.
Patient Advocacy
Yelak Biru stresses the importance of paying it forward and sharing your knowledge with others in regard to patient advocacy.
Patient Advocacy
Yelak Biru believes that a cancer diagnosis affects a person's entire family and support network, and notes that there are various ways for patients with cancer to involve and inform their families about their treatment.
Patient Advocacy
Yelak Biru describes how patients can benefit from becoming involved in patient advocacy.
Patient Advocacy
Yelak Biru provides some direction for people who are interested in becoming a patient advocate.
Patient Advocacy
Yelak Biru explains the role of the patient advocate and what inspired him to become one.
Lung CancerPatient AdvocacyPatient Stories
Hildy Grossman describes her struggle with the stigma linked to a lung cancer diagnosis and her work, through Upstage Lung Cancer and music, to educate the public about lung cancer.
Breast CancerPatient Advocacy
Hope Nemiroff’s inability to easily get answers to some of her questions during her breast cancer experience led her to establish Breast Cancer Options, which offers free services, education, and advocacy to patients with breast cancer.
Financial SupportPatient Advocacy
After facing the potential financial burden of his own medical bills, cancer survivor David Mitchell founded Patients for Affordable Drugs, a nonprofit organization aimed to control the cost of drugs and make them affordable for patients with cancer.
Cancer BiomarkersPatient AdvocacyPatient Stories
Wenora Y. Johnson, 3-time survivor, shares her cancer story and encourages patients to ask their care team about biomarker testing.
Patient AdvocacySurvivorship
Lisa Lurie went from “bald, breastless, and bewildered” to all-glammed-up as a cancer survivor and founder of Cancer Be Glammed, a nonprofit organization that empowers women to recover with dignity and positive self-esteem. Last fall, Lisa was a finalist for CONQUER’s Hero of Hope Patient Award, and although she didn’t win, this experience was a milestone in her cancer story.
Patient AdvocacyPatient StoriesProstate Cancer
Dennis Golden was an active, fit, 70-year-old when he learned he had prostate cancer. He was surprised to discover that few men know the warning signs and how potentially serious it can be. In response, he formed the National Prostate Cancer Awareness Foundation to educate men about this disease.
Patient Advocacy
Kathy Gram faced colorectal cancer with a positive attitude, good humor, and support from family and close friends. When her disease was in remission, she shared her hard-won wisdom with others as a Patient Advocate. She reflected on the lessons she had learned as a 12-year cancer survivor.

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