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Neuroendocrine Tumors

Drugs for Neuroendocrine Tumors (NETs)/Carcinoid Syndrome

Here are the drugs and financial support services available to patients receiving treatment for Neuroendocrine Tumors (NETs)/Carcinoid Syndrome.

Afinitor (everolimus) Tablets

Drug company: Novartis
800-245-5356

Afinitor is a kinase inhibitor used for the treatment of adults with progressive neuroendocrine tumors of pancreatic origin and adults with progressive, well-differentiated, nonfunctional neuroendocrine tumors (NETs) of gastrointestinal or lung origin that are unresectable, locally advanced, or metastatic.

Novartis’ Patient Assistance NOW Oncology offers 2 financial assistance programs for patients using Afinitor:

Novartis Oncology Universal Co-pay Program

Through this program, patients with private insurance will be responsible for up to $25 monthly in copay and co-insurance for Afinitor. The program pays the remaining balance until a yearly maximum of $15,000 is met.

Novartis Patient Assistance Foundation

To be eligible for financial assistance through this program, patients without insurance must be US citizens and must provide proof of income that meets the financial eligibility requirements. Eligible patients may receive Afinitor for free until prescription drug coverage becomes available to them.

Lutathera (lutetium Lu 177 dotatate)

Drug company: Advanced Accelerator Applications
844-638-7222

Lutathera is a radiolabeled somatostatin analog used for the treatment of adults with somatostatin receptor-positive gastroenteropancreatic neuroendocrine tumors (NETs), including foregut, midgut, and hindgut NETs.

AAA PatientCONNECT offers 2 financial assistance programs for patients who have been prescribed Lutathera:

AAA PatientCONNECT Copay Assistance Program

For eligible patients who have private insurance, this program provides up to $15,000 annually, so that patients pay no more than $25 per an infusion of Lutathera.

AAA PatientCONNECT Patient Assistance Program

Through this program, eligible patients who have no health insurance to cover their medication will receive help to cover their cost of Lutathera.

Somatuline Depot (lanreotide) Injection

Drug company: Ipsen
866-435-5677

Somatuline Depot is a somatostatin analog used for the treatment of patients with unresectable, well-differentiated or moderately differentiated, locally advanced or metastatic neuroendocrine tumors (NETs) of gastrointestinal or pancreatic origin.

Ipsen Cares offers 2 financial assistance programs for patients using Somatuline Depot:

Somatuline Depot Virtual Copay Savings Program

Eligible patients with private insurance pay no more than $5 per prescription with this program for 12 months, 13 injections, or for a maximum copay benefit of $20,000 (whichever comes first). Patients with no insurance, or those whose insurance does not cover Somatuline Depot, may pay more than $5 per prescription and their maximum copay benefit amount for prescriptions is $1,666.66, up to an annual maximum of $20,000.

Somatuline Depot Patient Assistance Program

Eligible patients who are experiencing financial hardship, or who have no insurance coverage, and meet specific medical criteria will receive Somatuline Depot for free.

Sutent (sunitinib malate) Capsules

Drug company: Pfizer
877-744-5675

Sutent is a kinase inhibitor used for the treatment of patients with locally advanced or metastatic pancreatic neuroendocrine tumors (NETs) that have progressed and cannot be removed by surgery.

Pfizer Oncology Together offers 2 financial assistance programs for patients using Sutent:

Pfizer Oncology Together Co-Pay Savings Program

This Pfizer program assists eligible patients with private insurance so that their copay for Sutent is $0 monthly, with a maximum savings of up to $25,000 annually.

Pfizer Patient Assistance Program

This program serves patients who are either uninsured or those with government insurance. Uninsured patients may qualify to receive Sutent for free or at a savings. Eligible patients with government insurance, who cannot find independent charitable foundation support, may receive Sutent for free.

Carcinoid Syndrome

Sandostatin LAR Depot (octreotide acetate for injectable suspension)

Drug company: Novartis
877-503-3377

Sandostatin LAR is a somatostatin analog used for the longterm treatment of patients with severe diarrhea or flushing episodes associated with metastatic carcinoid tumors.

Novartis’ Patient Assistance NOW Oncology provides 2 financial assistance programs for patients using Sandostatin LAR Depot:

Novartis Oncology Universal Co-pay Program

Patients with private insurance will pay up to $25 per month in copay and co-insurance. The program pays the remaining balance for Sandostatin LAR Depot until a yearly maximum of $15,000 is met.

Novartis Patient Assistance Foundation

For patients without insurance, to be eligible for financial assistance through this program, a patient must be a US citizen and must provide proof of income that meets the financial eligibility requirements. Eligible patients may receive Sandostatin LAR Depot for free until prescription drug coverage becomes available to them.

Somatuline Depot (lanreotide) Injection

Drug company: Ipsen
866-435-5677

Somatuline Depot is a somatostatin analog used for the treatment of adults with carcinoid syndrome, and reduces the frequency of short-acting somatostatin analog rescue therapy.

Ipsen Cares offers 2 financial assistance programs for patients using Somatuline Depot:

Somatuline Depot Virtual Copay Savings Program

Eligible patients with private insurance pay no more than $5 per prescription with this program for 12 months, 13 injections, or for a maximum copay benefit of $20,000 (whichever comes first). Patients with no insurance, or those whose insurance does not cover Somatuline Depot, may pay more than $5 per prescription and their maximum copay benefit amount for prescriptions is $1,666.66, up to an annual maximum of $20,000.

Somatuline Depot Patient Assistance Program

Eligible patients who are experiencing financial hardship, or who have no insurance coverage, and meet specific medical criteria will receive Somatuline Depot for free.

Xermelo (telotristat ethyl) Tablets

Drug Company: TerSera Therapeutics
888-600-8116

Xermelo is a tryptophan hydroxylase inhibitor used for the treatment of patients with carcinoid syndrome diarrhea, in combination with a somatostatin analog, in adults whose disease is inadequately controlled by somatostatin analog therapy.

TerSera Therapeutics offers 1 financial assistance program for patients using Xermelo:

$0 Co-pay

For patients with private insurance, TerSera Therapeutics provides Xermelo with a $0 copay and up to $10,000 annually.

Table. Drugs Prescribed for Neuroendocrine Tumors (NETs)

  • Drug name (generic name)
  • Drug company
  • Indications
  • Patient support services
    Drug name (generic name)
  • Afinitor (everolimus) Tablets
  • Drug company
  • Novartis
  • Indication
  • Treatment of adults with progressive neuroendocrine tumors (NETs) of pancreatic origin

    Treatment of adults with progressive, well-differentiated, nonfunctional NETs of gastrointestinal or lung origin that are unresectable, locally advanced, or metastatic
  • Patient support services
  • Novartis Oncology Universal Co-pay Program
    877-577-7756

    Novartis Patient Assistance Foundation
    800-277-2254




Carcinoid Syndrome
  • Drug name (generic name)
  • Drug company
  • Indications
  • Patient support services


    Drug name (generic name)
  • Xermelo (telotristat ethyl) Tablets
  • Drug company
  • TerSera Therapeutics
  • Indication
  • Carcinoid syndrome diarrhea, in combination with a somatostatin analog
  • Patient support services
  • $0 Co-pay
    888-600-8116

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Last modified: April 7, 2021

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