LymphomaPatient StoriesPediatric Cancer
To disclose or not to disclose having cancer, that is the question. Tonya Marie Pan, a survivor of stage III non-Hodgkin lymphoblastic lymphoma, shares insights into the difficulties of communicating with others as a patient with cancer.
Read Ernest William II's story of being diagnosed with Hodgkin lymphoma.
By Tracy Wright
Following 6 months of intensive chemotherapy to treat his stage IV non-Hodgkin lymphoma, Dan Dean decided he wasn’t comfortable having a bone marrow transplant.
Hero of HopeLymphomaPatient Stories
Hodgkin lymphoma survivor Seth founded STOMP the Monster, a nonprofit organization for patients with cancer. Since its inception, the organization has given $1.5 million in grant funds, which are raised through various fundraisers.
After a slew of seizures, misdiagnoses, and unanswered questions, Mouhamad Beydoun found out that, at the ripe age of 24, he had cancer covering his entire brain.
Jason Micheli, a pastor and the author of Cancer is Funny: Keeping Faith in Stage-Serious Chemo, explains his mindset and the difficulties of dealing with uncertainty after a lymphoma diagnosis.
FDA Approvals, News & UpdatesLymphomaNewsworthy
In October 2017, the FDA accelerated the approval of Calquence for the treatment of adults with mantle-cell lymphoma who have received at least 1 previous therapy.
By Kelsey Moroz
“The first thing I said was, there’s no way. I consider myself the healthiest person I know. There’s nothing that I did that could have caused cancer,” Rachelle said. “I was just in complete shock.”
Celebrating Progress and Sharing Hope: The Leukemia & Lymphoma Society to Host Free Rocky Mountain Blood Cancer Conference for Blood Cancer Patients, Survivors and Caregivers
The Leukemia & Lymphoma Society (LLS) will be hosting its 8th Annual Rocky Mountain Blood Cancer Conference on Saturday, April 7, 2018, at the Hyatt Regency Aurora-Denver Conference Center. LLS Blood Cancer Conferences are free education events for blood cancer patients, survivors, caregivers, family members and healthcare professionals.
After achieving remission of stage IV Hodgkin lymphoma, Sydney was told she would have less than a 5% chance of conception because of the treatment she received. Then 2 miracles happened.
By Carlo Lopez
NHL survivor Carlo Lopez shares his personal experience with cancer and his goal of becoming an oncology nurse to offer other people the knowledge and experience he gained as a patient.
“CAR T-cell therapy provides an exciting and additional option for patients who have failed more traditional regimens,” says Dr. Gwen Nichols, Chief Medical Officer for Leukemia & Lymphoma Society.
After being hit by “the cancer bomb” at age 20 and inspired by her grandfather’s experience with cancer, Madison Miller started a nonprofit organization to provide resources for other patients with cancer.
Nurse Navigator Claire White describes the way she tells her patients what CAR T-cell therapy is and how it works.
Mantle-cell lymphoma is one of 70 subtypes of non-Hodgkin lymphoma. Although the precise cause is not known, the same genetic abnormality has been identified in a high percentage of patients.
Common signs and symptoms of mantle-cell lymphoma may be similar to other conditions. A comprehensive workup including a physical examination, lab tests, and imaging may be required to establish a definitive diagnosis and identify the disease stage.
A number of treatment options are available for patients with mantle-cell lymphoma. The specific choice of treatment may depend on the stage of the disease, symptoms, and the patient’s age and health status.
Patients and their loves ones should take part in key decisions regarding their care, and it is therefore important for patients to communicate their perspective during the shared treatment decision-making process.
Electronic medical records can help healthcare providers communicate and share information more efficiently than ever before, resulting in tangible benefits for patients with cancer.
The majority of people with mantle-cell lymphoma are covered by Medicare, which has several coverage options for patients to consider.
To deliver the best possible care, members of the treatment team must communicate and coordinate with one another. Patients with mantle-cell lymphoma can take an active role in ensuring their treatment team stays connected.
If their first treatment stops working, patients with mantle-cell lymphoma are prescribed a different therapy. Several new treatment options are available for these patients, with several more being studied in clinical trials.
Most patients with mantle-cell lymphoma are expected to share in the cost of their treatment. Understanding health insurance benefits will help them to anticipate their out-of-pocket cost responsibilities.
Many patients with mantle-cell lymphoma face challenges related to the cost of their medications and other expenses associated with their care. Fortunately, assistance is available for many patients in need.
Many clinical trials are taking place to investigate new drugs for treating mantle-cell lymphoma. Patients who are thinking about participating in a clinical trial should speak with their healthcare team to get all the facts before making their decision.
Cancer treatment can be expensive, with numerous unplanned expenses. Fortunately, members of the healthcare team can help guide patients to the resources they need to plan ahead.
Although stem-cell transplantation can be an effective treatment for mantle-cell lymphoma, patients have many things to consider when deciding whether this option is appropriate for them.
It is an exciting time for mantle-cell lymphoma research, with several new therapeutic options showing promise in treating this rare but often aggressive form of non-Hodgkin lymphoma.
Brigid Wallace contemplates the choices she made when living in the “new normal” after her cancer diagnosis. She describes the struggles and personal victories that tested her faith and strength after she learned she had non-Hodgkin lymphoma.
In February 2019, the FDA issued a letter to raise awareness of the risk for a rare type of lymphoma, BIA-ALCL, that is linked to all types of breast implants. Although this is an uncommon reaction to implants, all women who have or intend to get an implant after breast cancer should be aware of this risk. Learn more about this risk here.
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