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Multiple MyelomaSide-Effects Management

Potential Side Effects and How to Treat

Jack Aiello shares his experience on orals, and the significance of informing patients of the side effects and mitigating them.
Video Library – February 5, 2016
Jack Aiello
Patient Advocate
San Jose, CA
Multiple myeloma survivor

It's actually been a long time since my medical team gave me some information with respect to an oral treatment. That said, what is helpful is that they gave me the detailed understanding of things I previously discussed. When should I be taking it, how often?

For example, I was on an oral treatment called thalidomide. Thalidomide tended to make you sleepy. The recommendation was take it before you go to bed and you will get a fine night's sleep, which you did. That was an important recommendation as opposed to taking it in the morning and you're sleepwalking through the day.

I think that it's also important that they at least make you aware of potential side effects. The issue if someone says, "Well, this is going to cause some stomach ache," is that with the patient, once they take it, if they get a stomach ache, they make think, "Oh, that drug has caused it. It may have. It's more important to have complete information.

If I might get a suspected skin rash, if I might have some type of other side effect, it's important for doctors to share that information and furthermore, what to do if that happens.

There may be drugs that I should be taking prophylactically to prevent those side effects from occurring and maybe I am. Maybe those dosages should be increased, or not. Doctors can help you make sure that the side effects you experience are minimal.

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Last modified: October 31, 2017

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